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Resource Guide for Scleroderma

Scleroderma foundation

Address:

300 Rosewood Drive, Suite 105

Danvers, MA 01923

Phone:

1-800-722-HOPE (US toll free)

978-463-5843

Description of services provided:

This site has information about various aspects of scleroderma. Also available are updates on recent research, upcoming seminars, and conferences. You can locate local chapters of the foundation, as well as support groups for patients and families. An online store run by the foundation allows you to order books on a variety of topics pertaining to scleroderma, like how to live and cope with the condition and its symptoms.

Scleroderma research foundation

Address:

220 Montgomery Street, Suite 1411

San Francisco, CA 94104

Phone:

1-800-441-CURE (US toll free)

415-834-9444

Internet address:

http://www.srfcure.org

Description of services provided:

This website provides general information about scleroderma, its symptoms, diagnosis, and treatment. You can read about current research studies, learn about upcoming conferences and symposia concerning research on scleroderma, and access a newsletter detailing recent research findings about scleroderma. You can locate specialized scleroderma clinics, research centers, and specialists who treat patients with the condition.

National institute of arthritis and musculoskeletal and skin diseases

Address:

NIAMS/National Institutes of Health

1 AMS Circle

Bethesda, MD 20892-2520

Phone:

1-877-22-NIAMS (US toll free)

1-301-495-4484

Internet address:

http://www.niams.nih.gov

Description of services provided:

This website offers detailed information about scleroderma and other types of arthritis and rheumatic diseases, news releases and recent research findings, and information on research initiatives and studies that are accepting patients.



Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.

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